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Can Barely Get Refreshing Sleep, Some Days Better Than Others.


shadow281

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8 out of 10 times I will wake up feeling like I hardly slept at all. On the rare days that I do wake up feeling refreshed, those days I usually feel less depressed (not sure if it's a coincidence) and I tend to feel healthier too. Plus, usually on the night prior to waking up feeling better, it doesn't take me as long to sleep...but I am not sure if this is connected.

I remember my sleeping sometimes not being the best during my younger years, but it got worse as time went on, most just saying I wasn't getting enough sleep (which is a load of crap, just it always took me forever to sleep) and it was causing some of my concentration issues. My concentration has improved greatly since I cut gluten from my diet, but I still suffer from tiredness.

This doesn't appear to be CFS, since I can still exercise without feeling worse after wards. Plus I tend to feel the most awake at night for some weird reason.

I did try to ask my doctor to allow me to have a sleep study (incase maybe I have mild sleep apnea or something, I do have a very stuffy sinus most of the time...so that could be the cause?), but he couldn't let me since I wasn't falling asleep all the time during the day. My mother is suggesting I try amitriptyline since it apparently helps her sleep, so I will try that one out in the coming days, but I am sick of this crap. I just feel too tired most of the time to get things started.

Today I am particularly tired. I had a rough time sleeping last night (I went to bed at around 01:20am, didn't sleep until at least after 03:00am, I woke up at around sometime between 10 and 11 am.) and I just kept feeling these weird sensations around my body (tingles, kept worrying I was having a stroke and negative mindset), I have had this for a very long time but it doesn't happen every night. I had a few days where I woke up feeling better after I first cut gluten from my diet (and I still have a clearer head thanks to it), but after four days I just started to wake up feeling less refreshed again. But at that time I also started my porn abstinence (since it can actually cause some of my depression symptoms, so I got to cut it out to see if I improve), which for real porn addicts (I was looking at it daily and every hour pretty much) can cause some sleeping problems.

Side note, I tend to become more awake after around 6-7 hours of waking up. Not sure why.

Edited by shadow281
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That sucks that your doc is like, well you're not falling asleep during the day, so you can't have sleep apnea.

I don't fall alseep during the day, well when I was in a really boring class I would drift off, but thats everybody isnt it? But I still never woke feeling refreshed and my mental health doc wanted me to have a sleep study done before they started medication for depression.

And well I have Upper Airway Resistance Syndrome. Very similar to OSA, but not as many apeanas an hour. Still the airway shuts and I stop breathing during the night.

Is there a way if you see a mental health doc your could talk to him and see if he can referr you out to get one? If everyone had to wait till they were always falling asleep during the day to even be tested for OSA or CSA then there'd be a lot of people dying from sleep apnea. My dad has severe sleep apnea and still wasn't always falling alsleep before he finally went to go get tested.

My unrefreshing turned out to be a combonation of UARS and depression.

Now that I'm on meds and I just got my nightgaurd to help keep my airway open at night, I'm acutally starting to get refreshing sleep :)

I woke up this morning at the time my alarm would've gone off, had I had to go into work today.

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That sucks that your doc is like, well you're not falling asleep during the day, so you can't have sleep apnea.

I don't fall alseep during the day, well when I was in a really boring class I would drift off, but thats everybody isnt it? But I still never woke feeling refreshed and my mental health doc wanted me to have a sleep study done before they started medication for depression.

And well I have Upper Airway Resistance Syndrome. Very similar to OSA, but not as many apeanas an hour. Still the airway shuts and I stop breathing during the night.

Is there a way if you see a mental health doc your could talk to him and see if he can referr you out to get one? If everyone had to wait till they were always falling asleep during the day to even be tested for OSA or CSA then there'd be a lot of people dying from sleep apnea. My dad has severe sleep apnea and still wasn't always falling alsleep before he finally went to go get tested.

My unrefreshing turned out to be a combonation of UARS and depression.

Now that I'm on meds and I just got my nightgaurd to help keep my airway open at night, I'm acutally starting to get refreshing sleep :)

I woke up this morning at the time my alarm would've gone off, had I had to go into work today.

I am going to have to bring this up. It's about darn time something is done about this.

I can actually feel more functional now since the changes, but the tiredness is still a massive hindrance that will cripple me if not sorted out soon enough. I do tend to wake up before my alarm goes off all the time too. I clearly ain't in deep sleep most of the time.

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I also experience unrefreshing sleep about 90% of nights and it's my number one desire of things to fix. Not only because I know my brain/body are capable of acheiving refreshing sleep, but because my symptoms of zombieness, anticipatory anhedonia, blunted emotions (like everyone else in the anhedonia thread), pain and inflammation, etc remissess so profoundly when I do get refreshing sleep, that I can't accept that sleep is anything less than a causative factor. Unfortunately, in over 20 years, haven't been able to string together a long enough strech of refreshing sleep to really ascertain whether it is the cure to my issues I suspect it to be.

In my case, I do have the physical symptoms of ME, including exercise intolerance and post-exertional malaise. My sleep study revealed a spontaneous arousal index of over 10/hour, along with a 5-hour REM latency, so I know that my sleep architecture is really messed up. CFS/ME and fibromyalgia both feature spontaneous arousals (alpha intrusions) from deep sleep, which can totally deprive one of quality, refreshing sleep. Low-dose tricyclics like amitryptiline or trazodone might help you achieve quality sleep, but they didn't help me.

IMO, your doctor sounds like an *****, or a financial-triage HMO robot, and you need a second opinion, because unrefreshing sleep is not normal. It's also my opinion, that barring depression causing insomnia or excessive disturbing dreams, the common occurance of doctors blaming depression for sleeping problems is total BS that one should not accept. It's very likely your sleeping problem is caused by something physiological, and it's worth it to pursue a sleep study - even if you have to pay the $2500 out of pocket that a polysomnogram costs.

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I also experience unrefreshing sleep about 90% of nights and it's my number one desire of things to fix. Not only because I know my brain/body are capable of acheiving refreshing sleep, but because my symptoms of zombieness, anticipatory anhedonia, blunted emotions (like everyone else in the anhedonia thread), pain and inflammation, etc remissess so profoundly when I do get refreshing sleep, that I can't accept that sleep is anything less than a causative factor. Unfortunately, in over 20 years, haven't been able to string together a long enough strech of refreshing sleep to really ascertain whether it is the cure to my issues I suspect it to be.

In my case, I do have the physical symptoms of ME, including exercise intolerance and post-exertional malaise. My sleep study revealed a spontaneous arousal index of over 10/hour, along with a 5-hour REM latency, so I know that my sleep architecture is really messed up. CFS/ME and fibromyalgia both feature spontaneous arousals (alpha intrusions) from deep sleep, which can totally deprive one of quality, refreshing sleep. Low-dose tricyclics like amitryptiline or trazodone might help you achieve quality sleep, but they didn't help me.

IMO, your doctor sounds like an *****, or a financial-triage HMO robot, and you need a second opinion, because unrefreshing sleep is not normal. It's also my opinion, that barring depression causing insomnia or excessive disturbing dreams, the common occurance of doctors blaming depression for sleeping problems is total BS that one should not accept. It's very likely your sleeping problem is caused by something physiological, and it's worth it to pursue a sleep study - even if you have to pay the $2500 out of pocket that a polysomnogram costs.

I am sorry you have the physical symptoms of ME, which don't appear to be the case with me. I can get some pretty good exercise even if I woke up feeling tired, but it fluctuates. But I never ever feel malaise after exercising unless I over do it or something. Swimming is the only exercise I do that drains my energy for the rest of the day, but other forms don't really do that. Plus swimming is known for doing that anyway.

But yes, most of my problems do remiss when I get refreshing sleep, just that's its so rare I can't really figure out if it helps all that much myself. I do know that I tend to sleep quicker the night before usually, and if I had a night where I toss and turn a lot and feel stressed out, that will determine how tired I will be the next day. This has been a problem since I was quite young, so I don't really think it's CFS/ME (I highly doubt that, since I mentioned I can exercise fairly well like I have always done, just a bit out of practice and don't feel like doing it as much) or Fibromyalgia (I do get pains, but they are not chronic). May be a depression related issue or how aroused I am before I sleep. I am not 100% sure.

But you are probably right, it is likely something physiological. I highly suspect it's to do with my breathing during the night. I do have a very stuffy sinus (which I can imagine, may make my oxygen intake really poor), which may be the cause. But I won't know until I get a damn sleep study.

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I am posting this since I would still honestly like to hear some more thoughts on this situation (I know I don't like bumping threads up either all that much, plus this is pretty damn serious), but some more on what happened with the Doctor's appointment a few months back about this.

Now for starters, I have been having unrefreshing sleep for most of my life in fact. Even before my social isolation (which can cause sleeping problems from what I read, as in no close friends or anything like that, still have my parents thankfully) and usually I just wake up feeling like I didn't have enough sleep. Back in my younger days I did have more days where I woke up feeling like I had sleep, but things have only recently felt slightly better since I cut gluten out of my diet (which added to my tiredness), but I don't think that really changes the fact that on some days I wake up feeling better than others. Feeling like I actually had sleep the night before.

But anyway, the doctor. I have been seeing him most of my life and I went to see him a few months back to see if I could ask for a sleep study since I suspected I had sleep apnea or something similar (I mentioned I have a very stuffy nose, especially when trying to sleep). He initially didn't believe I did since, for the reason I mentioned before, I wasn't falling asleep during the day and didn't look all that tired. So he did a questionnaire for me for sleep apnea, I didn't score very high at all. He was apparently unable to refer me unless I scored higher on that questionnaire. He suggested my sleep issues were due to depression and I can't really recall that happened next.

I have complained about my stuffy sinus in the past, and he always tried to get me on nasal sprays...but I don't know how to do it properly. It doesn't work very well and keeps getting into my throat. I am just not sure what to do now.

My mother (I don't really feel like talking to him either, I could do it myself but eh, don't really feel like it all that much) is going to call for an appointment on Monday. I am hoping something can be achieved since this is damaging my functionality.

So right now, I am cutting out Gluten from my diet, lowering my porn intake (removing it entirely, and since a week of doing this I have noticed colour returning to the world and my anhedonia is going down slightly...), and right now I have to sort my sleeping problems out. The last thing I may need to do is try to beat my social isolation. But that will be difficult seeing as this area has very few people I can actually connect to. Let alone get to know.

I don't feel anywhere near as tired as I used to in the morning since I cut gluten, but that may have just added to an already existing problem for all I know.

Edited by shadow281
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Another thing, whenever I blow my nose (sometimes I feel snot), it doesn't come out as yellow or green, but rather it's entirely clear. This doesn't appear to be an infection or anything like that.

My nasal passages have been clearer in the past. But only for briefly.

I can recall this issue becoming really bad around the age of 12. But I also may have bad it before then...I dunno. It's really hard to tell.

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  • 2 weeks later...

I have anhedonia, depression, sleep apnea and chronic fatigue (not CFS, just always tied). I was diagnosed with sleep apnea a few years ago and put on a CPAP (annoying machine to stop apneas) and it seems to help with the apnea, but I still have chronic fatigue,

Bummer

Anyway, I think that they are starting to do home sleep studies with auto-titrating CPAP machines. I don't know how to get one set up, but it is MUCH cheaper than a full blow sleep study. You might ask your Dr. If that would be possible.

Ethan

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  • 3 weeks later...

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