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gabapentin(neurontin) causing seizures??


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23 replies to this topic

#1 cat

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Posted 21 June 2006 - 04:36 PM

Hello to all.I havent been here in awhile.Wondering if anybody can shed some light .
Iv been suffering from seizures and dizzy spells for about a month.Doctors cannot figure it out yet. All my test perfect so far.Waiting on EEG..But I have noticed a pattern.My seizures usually start about 2 hours after I take gabapentin(neurontin) and When I upped my dose recently the seizures became more intense. I called my p-doc and I am weening off the gabapentin.Has ANYONE else experienced this?? Btw, Im on carbatrol to control the seizures.It is helping somewhat.
Cat

#2 Gonzo

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Posted 21 June 2006 - 06:18 PM

WB CAT! My wife has a seizure disorder which was under control for 3yrs. Then, she started taking Clomide. A week after she started taking it, she had 8 seizures in 12hrs.

Can neurontin cause seizures. Yes, but it's a very rare side effect. Other things could also cause seizures as well. Unfortunately, it's a process of elimination. It took my wife's neurologists 10 weeks to determine the cause. Keep posting and let us know how you're doing.
Brian
[We must learn to live together as brothers or perish together as fools.]
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#3 cat

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Posted 22 June 2006 - 03:36 PM

WB CAT! My wife has a seizure disorder which was under control for 3yrs. Then, she started taking Clomide. A week after she started taking it, she had 8 seizures in 12hrs.

Can neurontin cause seizures. Yes, but it's a very rare side effect. Other things could also cause seizures as well. Unfortunately, it's a process of elimination. It took my wife's neurologists 10 weeks to determine the cause. Keep posting and let us know how you're doing.


Thanks Gonzo,
Im one of those people who seems to always have opposite or uncommon side effects. I really hope that as I taper off the nerontin I will feel some improvement. Its been 4 weeks.I Feel like a prisoner.Cant drive or work. Im glad they figured out what was going on with your wife.Im Sure that was a hard 10 weeks for both of you.
Cat

#4 Gonzo

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Posted 22 June 2006 - 05:06 PM

It will be hell for awhile. It drove my wife nuts not to drive and I had ro hide the car keys to keep her off the road. In Michigan, you cant drive for 6 months after a seizure so feeling like a prisoner sounds familar. Hang in there!
Brian
[We must learn to live together as brothers or perish together as fools.]
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#5 cat

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Posted 26 June 2006 - 05:57 PM

The worst part is I am not able to get another appointment until july 18! Cant get in for a EEG until july 13. We are so frustrated! I am on carbatrol to control the seizures until then. It has helped but still cant drive because of this weird feeling of imbalance.The system seems to think it is ok for me to just live like this. Its crazy! :hearts:
just had to vent.
Thanks,
Cat

#6 Gonzo

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Posted 26 June 2006 - 06:47 PM

I hear similar things from my wife after a seizure. It's no fun. The imbalance feeling is common cat. just hang in there! (((((cat))))
Brian
[We must learn to live together as brothers or perish together as fools.]
-Rev. Martin Luther King, Jr
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#7 cat

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Posted 27 June 2006 - 12:51 PM

Thanks Gonzo,
It nice to know that "someone" understands. Ill post when I know something.
Cat

#8 cat

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Posted 28 June 2006 - 06:29 AM

Update
I went to the ER last night with bad headaches and reaccurring seizures.They did every test they could (Except EEG) everything came back perfectly normal.I had a seizure right in front of the Dr.I think that helped my situation alittle.At least they believe me!They put me on lyrica which I know is very similair to Neurontin which Im trying to ween off of! I will call my p-doc to check this out.
Cat :hearts:

#9 Gonzo

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Posted 28 June 2006 - 10:06 AM

Sorry about the seizures coming back. Did they do an MRI? Definitely follow up wiht your p-doc. ER doc tend to have a "treat em and release em" mentality. and dont always take the time to do a complete, in depth examine. They treat symptoms and not causes in my experience with ERs and seizures. They didnt do an EEG b/c those require prep before hand and need you to be somewhat sleep deprived. Hang in there and please be careful till they figure out the cause.
Brian
[We must learn to live together as brothers or perish together as fools.]
-Rev. Martin Luther King, Jr
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#10 jillivinilly

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Posted 28 June 2006 - 11:02 AM

Im one of those people who seems to always have opposite or uncommon side effects.


I am on neurontin to help prevent seizures. It really is true that meds affect everyone differently!

YOU know your body and you know how you are suffering so stay on those docs until they figure out what's going on.
Into the Great Wide Open - Tom Petty
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#11 cat

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Posted 29 June 2006 - 07:26 AM

My p-doc says NO to me taking the Lyrica.Im relieved.She didnt see a reason in introducing a new med when we could just up the carbatrol.Makes sense to me. I do miss the neurontin :hearts: it worked great for me.


yes, I had a MRI a month ago. all normal.At the time they thought I was having mini strokes(TIA)


And the battle continues!
Cat

#12 cat

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Posted 06 July 2006 - 04:15 AM

Well Im back on neurontin. I could not stand it anymore.It was the one medication that has helped me. I was off it for a few days and the seizures kept coming,so we dont think the neurontin caused them afterall. I have my EEG today.Im really hoping we find something!!

#13 Gonzo

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Posted 06 July 2006 - 06:10 AM

I hope the EEG finds something as well! My wife takes zonegram and has zero side effects. Good Luck!
Brian
[We must learn to live together as brothers or perish together as fools.]
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#14 cat

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Posted 15 July 2006 - 12:09 PM

Update:

According to my primary Dr.
My EEG is totally normal. :hearts: This is so frustrating!! Yes, maybe I should be happy about that.But you know, You just want to find something! Some reason for all of this.We have a friend who is a pharmisist. He still thinks it is the neurontin that is causing the seizures. So far the doctors dont think so. Im going to see a new nurologist on Tuesday. He has all my test results. So it will be interesting to hear what he has to say. Wish me luck!
Cat

#15 Gonzo

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Posted 15 July 2006 - 01:40 PM

Good Luck! It should be interesting.
Brian
[We must learn to live together as brothers or perish together as fools.]
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#16 surgeon2006

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Posted 15 July 2006 - 08:21 PM

Cat,

Sorry to hear the EEG didnt bring back and results...but on the other hand good to know nothings wrong with the neuro transmitters in your brain.
Hopefully the neurologist can pin point the cause of these seisures...i have heard of neurontin causing this but anything is possible.
Hang in there and try to keep your mind on other things...no stressing.

Kind regards
SO6
Life is too short to wake up with regrets,
So love the people who treat you right.
Forget about the ones who don't.
Believe everything happens for a reason.
If you get a second chance, grab it with both hands.
If it changes your life, let it.
Nobody said life would be easy....
they just promised itd be worth it.

#17 cat

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Posted 16 July 2006 - 10:01 AM

Thanks for your support.Ill post on Tuesday when I know more. Im feeling pretty hypomanic.Which isnt helping keeping the stress at bay .Lower dose of neurontin is making me so agitated! Im trying to hold on but Iv about had it with not driving and the side effects to carbatrol and just when I think im getting better, the siezures begin again!My family needs me. This has to end! :hearts:
Cat

#18 cat

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Posted 19 July 2006 - 11:30 AM

No good news really. The Dr says I have some kind of rare seizure and is sending me to a seizure specialist. It was strange.. After I told the Dr the symptoms of my siezures,He sort of shut down and then just said he was sending us to this top specialist who could help us. We tried to get more information but it was like he was just done. AAhh Im so confused.my head is spinning.I know less now then when I walked in there.Well I just hope This Dr. can get me in ,in a timely manner.I just cant keep going on like this.
Cat

#19 Gonzo

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Posted 19 July 2006 - 12:15 PM

I can relate. Most seizures are caused by some trauma to the brain. They can appear at anytime. The good news, some do age out of them.
With proper treatment, a normal life is possible.

My wife qualifies for social security disabiltiy but refuses to take it. Why? Because she doesnt consider herself disabled. Just realize some medications can interfere w/ conception and pregnancy. We found this out first hand. Also, seizures can affect short term memory. So when going to doctor's visits, take someone along who can be a second set of ears. I always go with my wife to her neurology appts. In the mean time, just try and relax, do as much research as you can and be your own advocate for treatment. I'll be here to support you as much as possible and dont hesistate to send me an email. Hang in there Cat! ((((CAT))))
Brian
[We must learn to live together as brothers or perish together as fools.]
-Rev. Martin Luther King, Jr
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#20 Jkm

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Posted 21 July 2006 - 09:05 AM

My Mother also worked with a severe seizure disorder for 28yrs. She was allergic to most of the typical meds used to control them and only found relief through a gp after a seizure sent her to the local er!

Talk about a strong person! She's been a significant role model for us children. :hearts:

Do what the doctors ask of you and you'll be fine. Maybe something triggers the seizures that you're not aware of. Don't give up is the message I have for you!

Jackie :bump:
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I have GAD. I worry about everything, lol!

#21 cat

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Posted 21 July 2006 - 12:38 PM

Thanks Jkm.


We Just found that there is a chance that my seizures are psychogenic.I have to get a video EEG done to be sure. With my history Im pretty sure that it could be. I have mixed feelings.If It is psychogenic then I can get off these drugs!(Carbatrol) But it also means alot more therapy. wow, what a mess! :hearts:
Cat

#22 Gonzo

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Posted 21 July 2006 - 01:41 PM

I never heard of those kind of seizures nor of a video EEG. Please, as you find out more, please educate me and our community. At least they are not medical which is good and bad. What a fascinating thing the mind is. Will be here for you as always. :)
Brian
[We must learn to live together as brothers or perish together as fools.]
-Rev. Martin Luther King, Jr
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#23 cat

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Posted 21 July 2006 - 10:40 PM

Gonzo,
Its all new to me now.Im doing lots of research. As I learn more I promise to share it .Yes, the mind is a very fascinating and sometimes scary thing!
If anybody knows or has experience with Psychogenic(PNES) Please share with me.

Thanks,
Cat

#24 cat

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Posted 09 September 2006 - 03:49 PM

Hello again,
Well after a video EEG and many other medical as well as written tests I have been diagnosed with Psychgenic seizures.Well they call them "spells" So far Im still trying to except it because the symptoms seem so physical.I dont feel I match the criteria. Its hard to believe my own brain is doing this to me.So they say this can happen when you have a trauma of some kind or if your under alot of stress or if you where sexually abused as a child.Its the brians way of coping. As the doctor said to me,they dont know alot about the brain or how it works.If this happened to me 50 years from now maybe Id have more answers. In the days to come I should know more and start treatment which I believe will be Psychotherapy and major increase of anti anxiety meds.

To answer my own question I quess it wasnt neurontin causing my seizures after all. -cat

Edited by cat, 09 September 2006 - 03:53 PM.





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