Thank you for all your recommendations. I certainly appreciate them, rather than the very condescending -- and totally incorrect, in more ways than one -- "I understand your depression and empathize. You would be surprised that most of us feel that discontent most of our lives--ebbing and flowing." If I were mentally healthy, I could brush things like that off. Unfortunately, I can't.
I will reiterate: Every time I look up clinical studies, I cannot participate. I did it again, entering your suggested "anhedonia." I have MS, and I do not qualify. If I did, I would go straight for DBS.
I also have terrible tinnitus, which is a horrendous ailment that no one seems to care about. I've read of five cases in which ECT made it worse. But, of course, no one studies it because it is unregulated and no one cares.
I also already have severe memory problems. I cannot risk worse ones. I would have to be in a nursing home.
VNS is very tricky, has a low success rate, and is not covered by insurance. In addition, I have a neck injury with years of pain that only recently subsided that I am worried would be exacerbated by the implant. Plus, I could no longer have MRIs for my neurological disease. It is all very upsetting.
I contacted the Cyberonics number. Thanks. I would have to find a surgeon and hospital to donate their services for free, then have my psychiatrist apply to have the device for free. My guess is they would take all my savings, which is all I have to live on. For a device of dubious success, the risks are enormous, and trying to find a dr. and hospital donating services? To someone who is not on welfare?
TMS is very expensive and not covered by insurance. I cannot find anything good on DBS, VNS or TMS success rates, frankly. Even the DBS, which seemed miraculous when it came out, has proven to have less than sanguine results. Why isn't there better data available? You notice that the success stories on the VNS site are now several years old.
I find that suspicious. Do you know where I can find more solid results for these devices?
Thanks for your post and your help.
I am reading Jonathan Cott's book, On the Sea of Memory. Cott had ECT in 1999, and it both wiped out much of his long-term memory and dramatically impaired his short-term memory and cognitive skills. People might want to balance his experience with Kitty Dukakis's. He decided to use the experience to write a book on memory.
So, the results with ECT can be both excellent and devastating. What bothers me is that it is unregulated, so no one can do studies making correlations between symptoms and success rates.
Edited by Unbearable, 05 October 2010 - 09:00 AM.