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Sep 27 2009, 02:08 AM
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Newbie

Group: Newbie
Posts: 25
Joined: 8-August 09
From: Australia
Member No.: 39,391

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Hope this post doesnt freak people out too much, but after i started paxil in 2002, my intestinal behaviour was never the same. I was passing a lot of gas and lots of bloating, whereas before Paxil i never did this.
Eventually i had to get my large intestine entirely taken out (due to Ulcerative Colitis.) and am currently living with a ileostomy bag.
Im kind of curious if anyone else here has/had major long term intestinal issues when taking Paxil?
Its too late for me and my large intestine, but its interesting to ponder whether Paxil was a trigger for my Ulcerative colitis, i really dont know if it was, or it was just a conincidence.
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Replies
(1 - 9)
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Sep 27 2009, 07:13 AM
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Junior Member
 
Group: Junior Member
Posts: 123
Joined: 10-June 09
From: LandLand
Member No.: 37,602

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QUOTE (broadwind @ Sep 27 2009, 12:08 AM)  Hope this post doesnt freak people out too much, but after i started paxil in 2002, my intestinal behaviour was never the same. I was passing a lot of gas and lots of bloating, whereas before Paxil i never did this.
Eventually i had to get my large intestine entirely taken out (due to Ulcerative Colitis.) and am currently living with a ileostomy bag.
Im kind of curious if anyone else here has/had major long term intestinal issues when taking Paxil?
Its too late for me and my large intestine, but its interesting to ponder whether Paxil was a trigger for my Ulcerative colitis, i really dont know if it was, or it was just a conincidence. I have nothing to share about this, but how long after 2002 did you start having the troubles and have your operation?
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Sep 28 2009, 02:49 AM
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Newbie

Group: Newbie
Posts: 25
Joined: 8-August 09
From: Australia
Member No.: 39,391

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QUOTE I have nothing to share about this, but how long after 2002 did you start having the troubles and have your operation? Started Paxil in Feb 2002, intestinal issues gradually started immediately, culminated in 2005 with a hospital stay for constant bleeding/diarrhea. 2007 another big hospital stay, Quit paxil in Sept 2008, then finally it was too overwhelming and I was headed for death, so I got my intestine out in May 2009.
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Oct 7 2009, 11:36 AM
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Senior Moderator

Group: Admin Team-Moderator
Posts: 2,572
Joined: 22-October 06
From: Heart of Texas
Member No.: 11,021

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Hello broadwind! After reading your post I decided to do a little research and the odd thing I found, with people having UC or other IBS where prescribed Paxil to help them release their anxiety, not everybody but a majority from what I can tell. I have not heard of anyone having a side effect in this nature from Paxil. Thank you for sharing! It could've been a coincidence or it may have triggered it. I'm so sorry to hear what all you went through, how are you doing these days?
This post has been edited by adorabelle: Oct 7 2009, 11:37 AM
Reason for edit: typo
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~ A little Consideration, a little Thought for Others, makes all the difference. ~ ~ Don't underestimate the value of Doing Nothing, of Just going along, Listening to all the things you Can't hear, and Not Bothering. ~ ~ You can't stay in Your corner of the Forest waiting for Others to come to You. You have to go to Them sometimes. ~ ~ When late morning rolls around and you're feeling a bit Out of Sorts, don't worry; you're probably just a little Eleven O'clockish. ~ ~ Winnie the Pooh ~
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Oct 9 2009, 02:52 AM
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Newbie

Group: Newbie
Posts: 25
Joined: 8-August 09
From: Australia
Member No.: 39,391

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QUOTE (adorabelle @ Oct 8 2009, 03:36 AM)  Hello broadwind! After reading your post I decided to do a little research and the odd thing I found, with people having UC or other IBS where prescribed Paxil to help them release their anxiety, not everybody but a majority from what I can tell. I have not heard of anyone having a side effect in this nature from Paxil. Thank you for sharing! It could've been a coincidence or it may have triggered it. I'm so sorry to hear what all you went through, how are you doing these days?  Yes thats interesting i heard something about some doctors prescribing Paxil for IBS. Also i heard that Zoloft can trigger colitis in susceptible people "Please PM member for link" I asked my doctor and surgeon multiple times about Paxil and serotonin and they didn't think there was a link. There are serotonin receptors in the intestine and maybe the SSRI freaks them out or something, hence the diarrhea side effect, mine just never recovered i think. Anyway it was still worth taking Paxil, i helped me hugely for my OCD and anxiety, I was in desperate straights before Paxil came along. Ill probably go back on Paxil after my next operation. I'm not overly enthusiastic having a bag for the rest of my life so I'm going to have two more ops over the next 4 months to basically fold the last 12 inches of my small intestine into a "j-pouch" and then sown to my rectum so i can at least go to the toilet like a normal person again just a lot more number twos than usual.
Reason for edit: Link Removed as per TOS
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Oct 11 2009, 12:02 PM
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Senior Moderator

Group: Admin Team-Moderator
Posts: 2,572
Joined: 22-October 06
From: Heart of Texas
Member No.: 11,021

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I'm glad to hear that in the future you will be able to use the toilet like a normal person again, I can't even imagine what is must be like for you  . All those surgeries must be tough, I hope that time will go by quickly and that you will be back to 'normal' in no time  When is your next surgery scheduled (if you don't mind me asking)? I'll be sending you some e-thoughts  .
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~ A little Consideration, a little Thought for Others, makes all the difference. ~ ~ Don't underestimate the value of Doing Nothing, of Just going along, Listening to all the things you Can't hear, and Not Bothering. ~ ~ You can't stay in Your corner of the Forest waiting for Others to come to You. You have to go to Them sometimes. ~ ~ When late morning rolls around and you're feeling a bit Out of Sorts, don't worry; you're probably just a little Eleven O'clockish. ~ ~ Winnie the Pooh ~
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Oct 13 2009, 06:14 AM
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Newbie

Group: Newbie
Posts: 25
Joined: 8-August 09
From: Australia
Member No.: 39,391

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QUOTE (adorabelle @ Oct 12 2009, 04:02 AM)  I'm glad to hear that in the future you will be able to use the toilet like a normal person again, I can't even imagine what is must be like for you  . All those surgeries must be tough, I hope that time will go by quickly and that you will be back to 'normal' in no time  When is your next surgery scheduled (if you don't mind me asking)? I'll be sending you some e-thoughts  .  Thanks for the good wishes. Down here in Australia everyone gets free unlimited medical care which ive happily been using. Its been very good and efficient so far, except they keep changing the date for my next operation which is quite frustrating. It was meant to be Sep 3rd, then got moved forward to the 20th August then got changed to October 15th. So all being well its this thursday Oct 15th. Its a 10 night hospital stay, I get a button with some nice painkillers which kind of spaces me out and keeps me from getting bored the first few days of recovery then ill be well enough to use the internet from the hospital bed to keep up to date on things.
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Nov 1 2009, 05:23 AM
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Newbie

Group: Newbie
Posts: 25
Joined: 8-August 09
From: Australia
Member No.: 39,391

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I made it out of hospital and the operation was successful, now i have my small intestine directly connected to my rectum. I still have my ileostomy which the waste comes out so the J-pouch has time to heal over the next 3 months without anything going through it. I dont have any sideeffects like nerve damage etc from the operation so im really relieved.
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Nov 1 2009, 12:29 PM
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Senior Moderator

Group: Admin Team-Moderator
Posts: 2,572
Joined: 22-October 06
From: Heart of Texas
Member No.: 11,021

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Broadwind, welcome back! I'm glad to hear things are ok! It is a big relieve that recovery is going well and that nothing went wrong! Remember to take things easy and keep us posted. 
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~ A little Consideration, a little Thought for Others, makes all the difference. ~ ~ Don't underestimate the value of Doing Nothing, of Just going along, Listening to all the things you Can't hear, and Not Bothering. ~ ~ You can't stay in Your corner of the Forest waiting for Others to come to You. You have to go to Them sometimes. ~ ~ When late morning rolls around and you're feeling a bit Out of Sorts, don't worry; you're probably just a little Eleven O'clockish. ~ ~ Winnie the Pooh ~
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