I have had BPD for 65 years and am going to post a series of instalments in my journal. Anyone wanting to give feedback as to the relevance of my account, I would appreciate their input.-Ron Price. Readers will find below the first two paragraphs of my 58 page story.-Ron
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1. Preamble and Introduction:

1.1 This is a longitudinal, retrospective account going back to my conception in October 1943. I make reference to my genetic predisposition to this disorder due to my family history of affective disorders in first-degree relatives who possess a clinical significance in the diagnosis of my bipolar disorder(BPD). There is an unquestionable justification for the inclusion of the family in the diagnostic process and any understanding of the disorder in my particular case as well as the cases of others. This account also provides a statement of my most recent experiences in the last year, 2007-2008, with manic-depression or BPD as it has come to be called in recent years. Some prospective analysis of my illness is also included with the view to assessing potential long-term strategies, appropriate lifestyle choices and activities in which to engage in the years ahead.

1.2 Some of the personal context for this illness over the lifespan in my private and public life, in my relationships to my family of birth and my two families of marriage, in my employment life and now in my retirement are discussed in this document. I include some of what seems to me my major and relevant: (a) personal circumstances as they relate to my values, beliefs and attitudes on the one hand--what some might call my religion as defined in a broad sense; (b) family circumstances; for example, my parents’ life and my wife’s illness; © employment circumstances involving as they did (i) stress, (ii) movement from place to place and (iii) my sense of identity and meaning; as well as (d) a range of other aspects of my day-to-day life and its wider socio-historical setting. This lengthy account will hopefully provide: (I) mental health sufferers, clients or consumers, as they are now variously called these days, with a more adequate information base to make some comparisons and contrasts with their own situation, their own predicament whatever it may be, and hopefully gain some helpful knowledge and understandings; and (II) those assessing my suitability for work or for public or private office with a useful document for making their decision about my capacity to take on the task/responsibility an informed one.
----------------------FOR MORE----GO TO MY BLOG AT THIS SITE-----------------

This post has been edited by RonPrice: Jun 2 2008, 08:45 AM

Hi Ron

Thanks for sharing your story. I hope it brings understanding to many bipolar sufferers and their families.

Trace

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Thanks Trace82....here is the 2nd part of this series in small packages of print for easier consumption.-Ron
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1.3 Many do not feel comfortable going to doctors, to psychologists and, more especially, to psychiatrists. Perhaps this is part of a general distrust of certain professional fields in our world today. Perhaps it is part of a general public being more critical. Still others do seek help; others try to work things out themselves and there are, of course, various combinations of those who try, those who have given up and those who go back and forth between the two poles of trying and not trying to sort out their disorder. Many often find the journey through the corridors of mental health problems so complex, such a labyrinth, that they give up in despair. Suicide is common among the group I refer to here—the sufferers from BPD and I could include depression(D) and a range of other illnesses and life battles of a traumatic nature. This account may help such people obtain appropriate treatment and, as a result, dramatically improve their quality of life. I think, too, that this essay of more than 23,000 words and fifty-eight A-4 pages(font 14) is part of: (a) my own small part in reducing the damaging stigma associated with BPD and (b) what might be termed “my coming out.”

1.4 The wider framework of my experience which I outline here is intended to place my BPD in context and should provide others with what I hope is a helpful perspective, as I say above, in relation to their own condition, their own problems and situations. Perhaps my statement may help some BPD sufferers describing and understand their personal histories. This essay, as I say, of fifty-eight A-4 pages(font-14) is written: (a) for doctors and various medical professionals who have dealt with or will come to deal with my disorder and especially for those who are now, at this present time, involved with my treatment should they find such a statement useful; (b) for internet sites and those registered/inquirers on the www at a range of health and mental health sites, especially the sections of sites dealing with D and MD/BPD; © for some of my relatives, friends and associations over the years with whom I still have contact in these early years(60-65) of my late adulthood(60-80) and to whom it seemed relevant to give such a statement; (d) for government departments, voluntary organizations, interest groups and Baha’i institutions who require such statements for reasons associated with our relationships and interactions; and (e) for myself as a reflection, for my own satisfaction, to put into words the story, the results, of an illness, a sickness, a disorder that has influenced my life for over more than six decades.

1.5 This document, this statement, originally written in 2003 for the Australian government’s now department of Human Services, its Centrelink section which with Disability Support Pensions, has been revised many times after further reflection. Now in its fifth edition after feedback from various doctors, friends and internet respondents as well as after an increase in my own knowledge of the illness as a result of further study, this document is an ongoing and changing entity as my experience of the disorder continues into the middle years(65-75) of my late adulthood(60-80). In fourteen months I will go on the Old Age Pension in Australia with this BPD still a part of my life.

1.6 I do not claim to possess a specialized and/or professional expertise in the field of the study and treatment of BPD. I do not work with people who have such problems, nor do I have a desire to do so, except as a participant at a number of internet sites concerned with relevant mental health topics and with people who cross my path serendipitously with various related problems. This long piece of writing, too long for some perhaps for most, not as sharply focussed on my actual day to day experience as some respondents on the internet have already indicated and not particularly relevant to the experience of others in an illness that has a very wide range of behavioural typicalities---this long piece of writing is but one of the many pieces of my writing these days. The vast majority of my writing and my interests both in and off the internet has nothing to do with this disorder.

1.7 After more than 60 years of dealing with this medical problem in my private and public life, I would be only too happy to put it to bed, to put it into some final corner and forget it. Sadly, or perhaps fortuitously, I can not do so because I still suffer, even after more than 60 years, with problems that are part of this disorder’s long history and current manifestation in my life. I have also become more conscious as I have come out, or so it is said colloquially, of how this statement has come to be of great help to many, especially at the 75 mental health sites on the Internet where I place all or parts of this document. Major affective disorders continue to be the leading causes of psychiatric disability and the need to develop safe, effective, and efficient long-term treatments for these disorders is of extreme importance not only to professional but to the millions of sufferers. People like myself with life experience of BPD have stories that can be of use to other sufferers. That is the core of my motivation for all the internet posting I do at mental health sites related to BPD.

1.8 Readers who are busy and not inclined to read a long statement like this are advised to skip to sections 10.3.7 and following to skip much of the history and then: (a) make some practical assessment of this account, an assessment relevant to their present and personal needs; (b) obtain a shorthand account of whatever information in this document is relevant to their particular situation; © assess my suitability to undertake: (1) some form of employment: FT, PT, casual or volunteer; as well as/or (2) some task that they think I could take on or some social or leisure activity in which I could engage with profit to others; and, finally, (d) understand my background of BPD more fully and so contextualize my life in order that they might understand me better.

2. My Experience of Manic-Depression:
Phase One--The First 37 Years 1943 To 1980
-----------------------instalment #3 to come at later date---------------------------------

Waiting for more of your story or pm me a link to the rest of it please. I can't find it in your blog on this site.



This post has been edited by boaguy: Aug 16 2008, 05:15 PM